Still Here, Still Me: Embracing the Person Living with Dementia Right Now with Marilyn Raichle - Episode 172

Still Here, Still Me: Embracing the Person Living with Dementia Right Now with Marilyn Raichle - Episode 172

In this deeply moving episode of the Caregiver Relief Podcast, host Diane Carbo sits down with Marilyn Raichle, author of Don’t Walk Away and founder of The Art of Alzheimer’s. Marilyn shares a radical transformation: how she went from a daughter planning to "walk away" from her mother’s diagnosis to becoming a "care partner" who discovered a world of joy, laughter, and hidden gifts.

If you are feeling bone-tired, grieving a loved one who is still sitting right in front of you, or struggling to find a "spark," this conversation is the breath of fresh air you’ve been waiting for.


📖 Episode Highlights

  • The Promise to Walk Away: Marilyn recounts the moment her mother asked her to "walk away and live your own life" if she ever got Alzheimer’s—and why Marilyn ultimately couldn't keep that promise.
  • Art as a Bridge: How a simple painting class revealed a "stunning" creative side of her mother that Marilyn never knew existed, proving that the person is still there, just expressed differently.
  • From Caregiver to Care Partner: The "aha moment" when Marilyn realized that her own energy and presence directly impacted her mother's well-being.
  • The Power of Play: Heartwarming (and hilarious) stories of playing Scrabble until age 96 and the famous "Silent Night" to "Polly Wolly Doodle" piano medley.
  • Innovation in Care: A look at the Maud’s Awards, which celebrates the most innovative dementia care programs in the country, from youth-led art initiatives to "Meet Me at the Movies".

✨ Why You Should Listen

"Sometimes your brain just gets in the way." — Marilyn’s Mother

This episode isn't just about the hardships of memory loss; it's about the enduring humanity that remains. Marilyn reminds us that while we can’t change the diagnosis, we can change our perspective. By "hopping on for the ride" and entering their world, we find that people with dementia are still capable of giving love, teaching lessons, and sharing a deep, belly-aching laugh.


👤 About the Guest: Marilyn Louise Raichle

Marilyn is a dedicated advocate for changing the narrative around dementia. You can follow her journey and work here:

💡 Marilyn’s Closing Advice for the "Bone-Tired" Caregiver

  • Relax & Smile: They mirror your emotions; if you are calm, they are more likely to be too.
  • Listen & Ask: Don't ask "Do you remember?" instead, ask "What do you think?".
  • Share Joy: Find one thing you both enjoy for just five minutes a day.
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