Who has Died from Lewy Body Dementia?

Who has Died from Lewy Body Dementia?
Lewy Body Dementia

Introduction: What is Lewy Body Dementia and why is it important to understand?

Lewy Body dementia (LBD) is a type of dementia that affects the brain's ability to function properly. It is named after the German neuropathologist Fritz Heinrich Lewy who first identified the abnormal protein deposits that are characteristics of the disease. LBD can be classified into two main categories; Dementia with Lewy Bodies (DLB) and Parkinson’s Disease Dementia (PDD).

LBD is a progressive, degenerative illness, meaning that it gets worse over time. Symptoms usually start gradually and worsen as the illness progresses. Common symptoms of LBD can include confusion, difficulty paying attention, memory loss, visual hallucinations, movement problems, depression, and sleep disturbances. It can also affect behaviour, judgement, and speech.

It is important to understand LBD because it affects many people around the world. Over one million Americans are currently living with the illness and it is estimated that up to 1.3 million will be diagnosed by 2030. Unfortunately, there is no cure for LBD and treatments focus on managing symptoms. Therefore, it is essential to know the facts about LBD in order to get the best possible care.

Types of Lewy Body Dementia

Lewy body dementia (LBD) is a progressive disease gradually affecting an individual's cognitive, motor, and behavioural functioning. It is caused by the accumulation of abnormal proteins in the brain known as Lewy bodies. There are three stages of Lewy body dementia: mild (or early), moderate (or middle), and severe (or later).

Mild Stage

In the mild stage of LBD, individuals will experience increasingly frequent memory difficulties and cognitive changes. These may be noticed in a person’s ability to recall recent events, difficulty making decisions, or reduced problem-solving abilities. In addition, a person may have difficulty recognizing familiar people or places, and may become confused in unfamiliar surroundings.

Moderate Stage

The moderate stage of LBD is marked by significant changes in the individual's behavioural patterns. This often includes mood swings, agitation, violent outbursts, sleep disturbances, and problems with coordination or balance. As the disease progresses, these behaviours may become more extreme and can interfere with daily life.

Severe Stage

The severe stage of LBD is often characterized by worsening cognitive impairment, including significant memory loss and difficulty communicating. Individuals may become physically unsteady and require assistance with activities of daily living. It is during this stage that a person with LBD may become more vulnerable to other medical conditions, such as infections or pneumonia.

In summary, there are three stages of Lewy body dementia – mild, moderate, and severe. Each stage presents its own unique set of challenges for those affected by the disease as well as their caretakers and loved ones. In order to better understand and manage LBD, it is important to become familiar with how the stages progress and to be aware of the potential signs and symptoms.

Symptoms of Lewy Body Dementia

Lewy body dementia can have many symptoms, and they vary from person to person. It's important to have a clear understanding of the signs and symptoms of this condition so that it can be properly diagnosed and treated.

The most common symptoms of Lewy body dementia involve changes in cognitive abilities such as memory, thinking, problem-solving, and language. These changes can affect someone's ability to function in everyday life. Additionally, some people may experience mood and behavior changes.

Cognitive Symptoms

The most common cognitive symptoms of Lewy body dementia include:

  • Memory loss or difficulty remembering recent events
  • Poor judgement
  • Confusion or difficulty with making decisions
  • Changes in speech, such as difficulty finding the right words
  • Trouble understanding visual information or spatial relationships

Behavioral Symptoms

Behavioral symptoms of Lewy body dementia may include:

  • Excessive sleeping during the day
  • Seeing or hearing things that aren't there (hallucinations)
  • Acting out dreams while sleeping (nightmares or sleep disturbances)
  • Easily agitated or anxious
  • Depression

It's important to note that these symptoms can gradually get worse over time and may eventually lead to difficulties with daily activities, such as self-care, paying bills, and managing medications. It's also important to keep in mind that not everyone experiences all of the symptoms listed above. Each person's experience of Lewy body dementia is unique.

Diagnosing Lewy Body Dementia

Being diagnosed with a condition like Lewy Body Dementia (LBD) can be difficult and draining. It is important to understand the diagnosis process and how it can help you and your loved ones prepare for the future.

The diagnosis process of LBD is complex and requires multiple steps. The process usually begins with doctors assessing any cognitive or mental changes that have been observed in the patient. If LBD is suspected, they may order additional tests such as brain imaging scans, blood tests, and electroencephalograms (EEGs) to rule out other conditions. They may also refer the patient to specialists such as neurologists or psychiatrists for further evaluation.

Doctors may also use diagnostic methods such as the ‘Movement Disorder Society-sponsored revision of diagnostic criteria', which looks at a set of core features associated with LBD including physical changes in movement, abnormal behavior, memory decline, and sleep disturbances.

In some cases, doctors may use a technique called video-polysomnography, which looks at a person's sleep patterns to help diagnose LBD. This involves the patient being monitored overnight in a sleep lab while they sleep, to look for any sleep disturbances associated with the condition.

Once all medical tests and evaluations have been conducted, doctors will discuss their findings with the patient and their family. A definitive diagnosis of LBD can only be made after considering all the results of the tests. It is important to remember that LBD can be difficult to diagnose accurately, and doctors may need to conduct several tests before arriving at a diagnosis.

Treatment for Lewy Body Dementia

Lewy body dementia is a complex condition that can cause a variety of symptoms and complications. It can be difficult to diagnose and even more difficult to treat. However, there are several treatments available for people with Lewy body dementia and it is important to understand the options so you can work together with your healthcare team to find the best care possible.

The primary goal of treatment of Lewy body dementia is to slow down the progression of the disease. While there is no cure, medications and therapies can help manage symptoms and provide some relief. It's important to note that these treatments may not eliminate all of the symptoms, but they can help minimize them.

The most common medications prescribed in the treatment of Lewy body dementia are cholinesterase inhibitors, such as donepezil (Aricept). These medications can help improve memory and thinking, reduce anxiety, and improve motor control, although their effect may not be long-term. Other medications may also be used to treat specific symptoms, such as agitation, depression, hallucinations, sleep disturbances, and psychosis.

In addition to medication, there are a number of other therapies that may be used in the treatment of Lewy body dementia. These can include cognitive-behavioral therapy, which can help manage behavioral symptoms, and occupational therapy, which can help maintain physical functioning. Additionally, physical activity has been shown to improve cognitive and physical function in people with dementia, and can be beneficial in managing symptoms.

It is also important to focus on lifestyle changes in the treatment of Lewy body dementia. Eating a healthy diet, exercising regularly, and managing stress levels can all help manage symptoms and improve quality of life. Additionally, it is important to have a plan in place for managing daily activities, such as shopping, doctor's appointments, and social activities.

Finally, it is important to remember that treatment of Lewy body dementia should be tailored to each individual's needs and preferences. While medications and therapies are important, it is also important to focus on improving quality of life and maintaining independence. Working with your doctor and other healthcare professionals to create an individualized treatment plan can help ensure that you get the care that you need.

Who Has Died from Lewy Body Dementia?

Lewy Body Dementia (LBD) is a neurological disorder that affects memory and thinking. It is a progressive disease, and research shows that it may eventually lead to death. There are several notable cases of people who have died from this disease.

The first prominent case was the actor Robin Williams, who was diagnosed with LBD in 2014 and passed away the following year. His family said that he was suffering from a “long battle with Lewy Body Dementia” at the time of his death.

The Alzheimer's Association also cites the late actor James Garner as one of the celebrities that died of LBD. He was diagnosed in 2012 and passed away in 2014, four months after Robin Williams.

In addition, doctors attributed the death of journalist Morley Safer to Lewy Body Dementia in 2016. He was 81 when he died.

Other notable cases of people who have died from Lewy Body Dementia include folk singer Judy Collins, former US senator Edward Kennedy, and attorney David Boies.

While these cases are all notable, it should be noted that Lewy Body Dementia is rare, and only a small percentage of the population will ever be diagnosed with it.


In conclusion, Lewy Body Dementia is a debilitating neurological condition that can be difficult to differentiate from other forms of dementia. Its progression is typically emerged in three stages, and its symptoms include cognitive decline, changes in motor control, psychosis, and sleep disturbances. Lewy Body Dementia is diagnosed through a variety of medical tests and imaging processes. Treatment options may include medications, lifestyle changes, and home care services. Notably, many figures have passed away due to Lewy Body Dementia, including actor Robin Williams, musician Glen Campbell, and artist Thomas Kinkade. It is important to know and understand the risks associated with this illness in order to better support those affected.

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